Programme
Three days designed to move from relationship-building to actionable commitments.
At a glance
Registration, welcome session, speed networking, country snapshots, and networking dinner.
Scene-setting plenaries, three parallel working group sessions, and ECR mentorship.
Final working group session, presentations, research network roundtable, and next steps.
Working Groups
Six thematic groups, each leaving Madrid with a defined mandate, confirmed leadership, and a 2-year workplan.
Communication development, AAC access, eye gaze technology, implementation across healthcare systems
Epilepsy, non-epileptic events, EEG, breathing irregularities, autonomic dysfunction
Physiotherapy, scoliosis, gait, postural support, bone health, stereotypies
Feeding difficulties, GI disorders, growth monitoring, nutritional support, drooling
Emotional health, sleep, anxiety, pain assessment, quality of life, adult care transition
Site capability, regulatory alignment, trial design, outcome measures, registries, ethics
Be part of the conversation
Rett Forum is an invitation-only gathering. For enquiries about participation or sponsorship, get in touch.