Skip to main content

Sponsorship

Sponsorship

Partner with the first pan-European initiative to harmonise Rett syndrome care.

Why this matters

No European consensus guidelines exist for Rett syndrome care
Care quality varies dramatically across countries
The treatment pipeline is accelerating — with 25+ companies pursuing therapies
Families across 30+ countries deserve equitable access to care

A window of opportunity

Treatments are coming — but Europe isn't ready

New therapies are advancing, but there are no harmonised European guidelines for outcome measurement, follow-up protocols, or cross-border coordination of treatment access.

The gap is widening — but the community is ready

Care quality varies dramatically across Europe. But a critical mass of experts now exists — in clinical care, research, and patient data via rettX. What has been missing is the space to coordinate. Rett Forum provides it.

November 2026 is not an arbitrary date — it is the response to a need that can no longer wait.

Download the full prospectus (PDF)

Why sponsor Rett Forum?

For your organisation

  • Recognition as a supporter of European Rett syndrome care harmonisation
  • Presence at the first convening of its kind — with around 60 participants from across Europe
  • Understanding of the priorities emerging from six expert working groups
  • Connection with the broader European Rett syndrome community

For the Rett community

  • Enables the European guidelines process
  • Funds travel grants for young scientists from underrepresented countries
  • Supports working groups that continue well beyond the event

Sponsorship Tiers

BenefitPlatinumGoldSilverSupporter
Contribution from €15,000 from €8,000 from €4,000 from €1,000
Max sponsors per tier 2–3 4–5 6–8 Unlimited
Logo on event programme (print) Large Medium Small Listed
Logo on RSE Forum webpage Featured Standard Standard Listed
Verbal acknowledgment in opening plenary Named Named As group —
Named coffee break or session break Choice of slot Assigned — —
Exhibition / information table Dedicated table Shared area — —
Post-event outcomes report Full report Full report Summary Summary
Acknowledgment in post-event publications
Early notification of future RSE events
Social media acknowledgment Dedicated post Shared post Shared post —
Photocall backdrop Large logo Medium logo Small logo Logo listed

In-kind sponsorship is also welcome — venue, catering, travel grants, AV, or printing. In-kind contributions are recognised at the tier equivalent to their estimated market value.

Platinum

from €15,000

Maximum 2–3 sponsors

Reserved for organisations with the deepest commitment to advancing care and research in Rett syndrome.

  • Premium logo placement on printed programme, event signage, and RSE Forum webpage
  • Named acknowledgment during opening plenary by RSE chairperson
  • Named coffee break or networking session (sponsor chooses preferred slot, subject to availability)
  • Dedicated exhibition / information table during breaks and networking periods
  • Full post-event outcomes report including working group mandates, key discussion summaries, and next steps
  • Dedicated social media acknowledgment on RSE channels
  • Large logo on photocall backdrop — visible in all event photography
  • "Founding Platinum Sponsor" designation for future references to the inaugural Rett Forum

Gold

from €8,000

Maximum 4–5 sponsors

For organisations actively engaged in the Rett syndrome or rare disease space.

  • Logo placement on printed programme, event signage, and RSE Forum webpage
  • Named acknowledgment during opening plenary
  • Assigned coffee break sponsorship (e.g., "Saturday morning coffee sponsored by [Company]")
  • Shared exhibition area for materials and information
  • Full post-event outcomes report
  • Shared social media acknowledgment on RSE channels
  • Medium logo on photocall backdrop

Silver

from €4,000

Maximum 6–8 sponsors

For organisations supporting the Rett Forum initiative at a meaningful level.

  • Logo placement on printed programme and RSE Forum webpage
  • Group acknowledgment during opening plenary ("We thank our Silver sponsors...")
  • Summary post-event report (overview of outcomes and working group themes)
  • Shared social media acknowledgment on RSE channels
  • Small logo on photocall backdrop
  • Acknowledgment in any post-event publications

Supporter

from €1,000

Maximum Unlimited sponsors

For organisations, foundations, associations, or individuals wishing to support the Rett Forum initiative.

  • Name listed on printed programme and RSE Forum webpage
  • Logo listed on photocall backdrop
  • Summary post-event report
  • Acknowledgment in post-event publications
  • Early notification of future RSE events and partnership opportunities

Where your sponsorship goes

~40%

Travel grants

Supporting clinicians and young scientists from underrepresented countries to attend and contribute.

~25%

Venue & logistics

Conference facilities, technical equipment, and organisational infrastructure.

~20%

Catering & networking

Meals, social events, and networking opportunities that build lasting professional connections.

~15%

Communications & follow-up

Documentation, publication of outcomes, and post-event coordination of working groups.

Your sponsorship funds people and knowledge, not bureaucracy.

Independence commitment

  • The Scientific Advisory Board sets the agenda; sponsors have no approval or veto rights
  • Industry representatives may contribute evidence but do not chair working groups or vote
  • No exclusive or "title" sponsorship
  • All sponsorships publicly acknowledged and transparently disclosed

This commitment protects both RSE's credibility and the value of your sponsorship.

How to get involved

Rett Syndrome Europe is a parent-led, not-for-profit organisation founded in 1994. We walk this path ourselves — and we invite you to walk it with us.

forum@rettsyndrome.eu www.rettsyndrome.eu